3 months ago
Select custom invitations, rsvps, & thank you notes
Your guests contribute to both Group Gifts and Rare Disease Foundation
After the party, we send you the money & the rest to Rare Disease Foundation
Your contributions support three core programming initiatives. 1)The continued growth and expansion of local support groups. These groups host roundtable discussions and guest speakers, many of which are webcast to the online community. We support patients and families as they come together and develop a stronger voice as a community of rare disease advocates. 2)We create educational programs to increase awareness and support for rare disease within the junior health science community. 3)The Family Counselling and Assistance Program. Designed to fund counselling on a short-term basis for patients and families coping with rare disease. The lack of emotional counselling available to families is universally identified as the single most important element missing in rare disease diagnosis and beyond.